A new bed!

I am sorry it has been so long since I've written an entry. Everyone has been ill at Aaron's with colds and stomach bugs. However, one good thing has happened! Thanks to four very generous people and a store (Drogen's) willing to slash the price on a floor model, Aaron has a beautiful new double hospital bed. Kyle was willing to snuggle with his mom long enough for me to get a couple photos this morning. I think he was a little worried that he was being put to bed.



A week from Monday, Aaron will have a scan to see if the chemo (Tarceva) is helping. Send her all the positive energy or prayers you can.

When I downloaded the photos, I discovered a photo of Kyle from this past June with my friend, Jim Loudon. Like Kyle, Jim is a trainlover and volunteers for the Leatherstcking Railway Historical Society.
Kyle and I were lucky enough to run into him when visiting and Jim gave us a quick tour.

Monday, Monday

I called Aaron and asked for an update- actually, I said "I need material- what have you been up to?"

And well, not much to report. School has already taken its toll on Kyle and he stayed home sick today. As I was taking to Aaron, in the background I hear, "No, Kyle! That's Mommy's oxygen, don't touch!" Aunt Kim has apparently kept everyone in stitches while she was here, but she leaves tomorrow to go back home to Kentucky.

Getting around is still difficult, despite the oxygen, but Aaron got out for a bit, did some window shopping and enjoyed the lovely weather we are having.

I've encouraged Aaron to work on some hijinks for tomorrow. I'll keep you informed!

Friday

Kyle started Head Start yesterday. Glenda put him on the bus this morning bright and early. He brought a note home saying that he had a good first week at school. Seems like only the other day we were having a baby shower for him, how can he be off at school, already?

Kim wanted to take Aaron out to lunch, so as soon as Kyle got home from school, they piled into the car and went to Friendly's. Kyle announced that he wanted to go to sleep and tried to crawl under the table for a nap. School may take some getting used to!

A few random notes- Glenda was (is?) a big Elvis Aaron Presley fan, which accounts for Aaron's unique spelling of her name. (Well, perhaps not unique if you are a boy!)

Aaron has non-small cell lung cancer. Non small cell is the most common form of lung cancer. She is currently taking Tarceva which "is designed to block cell tumor cell growth by targeting the protein in your body called the Human Epidermal Growth Factor Receptor 1".

Thank you!

It has been so wonderfully heartwarming to discover how many kind and caring people are in the world. People I knew in another lifetime in another country have reached out, friends from the internet that neither I nor Aaron have ever actually laid eyes on, friends who have family members going through their own struggles have responded. Awesome is such an overused expression, but it really does fill me with awe.

Aaron has been enjoying having her Aunt Kim here, whom she hasn't seen in ten years. When I spoke with her yesterday, she was still having a hard time physically as she gets exhausted very quickly, despite the oxygen. However, she was in good spirits and even answered the phone with a cheery hello.

If she is still on oxygen when we have raised enough money, it will be hard to find an airline willing to take her as a passenger. However, to that end, we have a pilot who has volunteered to fly her, Glenda and the kids to Fl. So, one potential problem I was concerned about is solved! Aaron does think she will be off the oxygen soon though.

A little more information and a photo.

The overwhelming generosity that has been shown by family, friends, and the internet at large has been amazing and heartwarming. While talking with Glenda today, she said she just didn't know what to say. And I would have to concur. "Thank you" doesn't seem like enough. Amy had a suggestion to check with Disney and perhaps they would help. I thought that was a wonderful idea and will do that.

Aaron has never smoked, to my knowledge, she has never even tried a cigarette. 10-15% of people with lung cancer have never smoked and Aaron is in that unlucky category. For some reason, in that pool of non-smokers, more women than men will develop lung cancer.

She is 31 years old and lives in Oneonta, NY. The photo must have been taken this spring, though I am not sure of that.

I stopped by Aaron's this evening to pick up Glenda's dog who was in need of a little exercise and grabbed a couple photos to scan. I still need to find one of Tiffani, though. My good friend, Lisa Eklund, is a professional photographer and has volunteered to take some family portraits, so when those are taken, I will put those up as well.

This is Kyle. He is obsessed (and I do mean obsessed) with trains. His 3 year old birthday was this summer and every guest gave him a train toy of some sort. And oddly enough, without coordination, every toy was different!

Quick update

I had hoped to get some photos scanned last night and ran out of time. Aaron's Aunt Kim is coming today for a week, so maybe I can get some family photos while she is here.

Aaron was put on oxygen last night, but it should be a temporary message while we wait and see if the chemo is helping at all.

More later tonight. And thank you all, again.

An introduction

A little over three years ago, a spot was seen on Aaron's lungs. She was pregnant at the time, so not much could be done. After the baby was born, it was determined that Aaron had lung cancer. She was operated on, and went through chemotherapy and all was good. Up until this spring (2007) when Aaron discovered a lump near her lymph nodes.

Once again, Aaron went through chemo and radiation and all was good. Until a week after she finished the latest course of treatment. And another spot was discovered on her lungs. We hoped it would be pneumonia, except that it didn't respond to antibiotics and kept growing. Several scans later, it was determined to be a cancerous spot. An operation would be too dangerous as the tumor is in a place with many many blood vessels.

So, Aaron is at a point where nothing can really be done, other than treat her symptoms. Aaron's mom, Glenda, was told by the doctor that she might as well give up her apartment as Aaron will not be able to live on her own, again.

Aaron has not had an easy life. She was born with Cerebral Palsy. CP affects everyone differently. For Aaron it resulted in near blindness and very poor balance. She spent three months in a body cast as a teenager, wore leg braces for several years and has endured numerous operations on her legs and feet. One day I will get all the technical details of what she has gone through and post those.

She is 31, has a three year old son, Kyle and an 11 year old daughter, Tiffani. She has not had much money in her lifetime and has not had a lot of the luxuries that much of the US takes for granted.

However, Aaron has always had a good sense of humor and attitude about her life. There are four things she has expressed a desire for in this final stretch. She would like to taste lobster and cotton candy on a stick. She'd like a double hospital bed and she would like to visit Disney World. The lobster and cotton candy are easily doable. We might be able to manage the bed through Medicaid. But Disney World seems a little out of reach right now.

So that is where this blog comes in. I would like to raise $5000 to send Aaron, her mom and the kids to Disney World for a week. Aaron is far too old for programs like the Make-A-Wish foundation. She would never have been so bold as to ask the world for $5000. But my thought is, if it worked for Save Karyn, why not for someone who never even thought to buy a Prada bag? The trip will cost about $3500- for airfare, hotel, rental car and Disney passes. The additional money is so that they have a little spending money. If we manage to raise more than that, hey, maybe Aaron will get that bed, after all.